Apr 23 2009 03:40 am
Hi Susan. I actually found your webpage through the help of Facebook and wanted to tell you how helpful your site is. Micah Allen was born 6 years ago and Isaiah James was born 3 years ago, and I am still very much still searching to find some kind of sense in the maddness. Although I can very much see that they were such a blessing to me and my family it helps so much to read other's stories...maybe it makes me feel like I 'm not alone after all. Thanks for the wonderful webpage. May the Lord bless you!!!
Jun 19 2008 12:42 pm
Hi Susan you such a fantastic woman with an equally fantastic family who manage to stay strong in the face of unimaginable adversity.
Leroy
Apr 3 2008 12:22 am
Hi Susan, I would just like to say how sorry I am for you. I lost my little Nevaeh Marie on Nov. 1, 2007. She was born with one kidney and full of cyst. Her kidney never functioned. She lived for about 3hrs. I was very lucky to get lots of beautiful pictures. I found out at my 20 week ultrasound that the chances of survival were very slim. I carried Nevaeh Marie till 37 weeks...Dawn
Mar 7 2008 05:11 am
hello i just wanted to tell u u are a strong person i have had 2 misscarriages in the the last year i delivered my first at 15 weeks he was a boy and my second at 18 weeks he was a boys to and it has only been 2 weeks ago and i hurt so bad
Mar 7 2008 05:11 am
I'm sorry to hear about your baby. On November 6th, 1982 my mom had a son with potters syndrome. He lived for an hour or two. His name was Dustin.
Robin
Nov 4 2007 11:12 am
Hi Susan
Great to see the real you and how strong you really are. Take care... your friend, Nick xx
Jan 16 2007 12:46 am
luffin ya site www.babealisha.piczo.com
www.babealishasinviteasite.piczo.com
Oct 22 2006 09:55 am
Susan & family
you obviously have so much love to share xx which has helped you to cope through your sadness linda
Oct 4 2006 01:30 am
heyya i think u and ur family have coped really well. keli x
Oct 1 2006 02:52 am
hi your story is very moving i have lost my little sister not so long back and it is ver upsetting i think you have coped with it very well sophiexx
Sep 19 2006 03:19 am
Hi Susan I was very touched by your childrens story. I would like to invite you to a christian womens group Sisters With Heart. Come check us out tell them Carol sent you. hugs
http://www.sisterwithheart.com
Jul 8 2006 10:23 pm
hi susan your story really moved me and i just want to say i think you dealtwith it greatly my older brother died when he was born and i am afraid o say that i never saw or knew him also the oly thing we have got of him is a picture and it isnt very clear either so with all my thoughts and prayers with you becky 13
Jul 8 2006 10:24 pm
May your life be filled with sunshine and laughter xxxxxxxxxxxxxxxxxxxx
May 11 2006 09:00 am
hiya sue i think this site is great because as i was reading it i thought to myself that it must be differcult for you to share this with strangers and it must be hard living with this thought running through your head ery minuit of every day. Best wishes to you and your family and gud luck in the future xxxxxxxxxxxxxxxxx pat xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Apr 1 2006 12:41 am
Iya this is one of chelsea mates from the vick! that is a well sad story and i feel bad for your loss!!! luv rosie Atkinson and heather smith!
Mar 29 2006 12:50 am
Thank you so much for visiting Derek's site. You also have a wonderful site and just know that if you ever need to talk, I am here to listen. There are too many of us on this same road of heartache and grief. The only calming thing is to know that we are not on this road alone. *Hugs* to you and yours. Take care.
http://derekgonzalez.bravehost.com
Mar 26 2006 07:41 am
Hi Susan, It's nice to meet you hun, and thanks for signing my dad's guestbook. It's so hard when we loose someone. I lost my dad and brother in six months, the pain and hurt seems like it will never go away. Your memorial for the babies is just beautiful and full of love.
Mar 23 2006 08:58 am
hiya it is amy and sammi chelseas freind from school we think your site is brilliant and a loveley idea
love sammi and amy
Mar 19 2006 09:57 am
Susan, Chelsea & Family
Please except my condolences on the loss of Joanne also Susan's Daddy..Many Hugs Dodar6~MGH
Mar 19 2006 09:53 am
Susan, This is a beautiful site and a wonderful way to honor your Loved ones!
I know this was a trial for you in life,But you have overcome! Even with everything you are going through yourself,you are still a very caring Loving person to others.
God Bless you and your family.Your friends,
Carla & Jackie Piearcy
Mar 26 2006 01:25 am
hiya, this is chelseas friend from school. i think your site is really good, and i think your so brave. i think this site was a good idea as well, and its done well.
Emily XxX
Mar 17 2006 02:10 am
Joanne And Twin Savage-Bowes:
Hi darling angels,Now your 21 it was a nice day yesterday i do hope you enjoyed the 21 balloons,Also your teddies i left you at lancaster crem,I decided to let the balloons go in Barrow at yours and grandpops tree planted at the cematary,Auntie lynda came to let the balloons go,And kimberley your little sister decided to come home for the night instead of staying at her own home as you know when you are looking over your sister she is doing well at her jobs,Your sisters kimberley and chelsea also brother karl send there love to you both.Well i got through yesterday it was quite hard but done it i toasted the birth of you,My pain will never go darling angels until i hold you and tell you how much i love you.Although you were not davids children he said you should have been as he was my first love we have our life back on track now and has he as taken on your sister kim and brother karl he looks also as if you are his and loves you all the same.
Well bye for now love you lots
Mummy x and Daddy(Dave)xx
Mar 15 2006 09:50 pm
Well my darling babies its now your 21st birthday,mummy didn't sleep very well last night awake with pain think its down to missing you both,I know your safe and grandpop will be taking care of you.Well its 5.40am the time you were both born those sad 21 years ago,I wish i could have had time with you and held you like i did your sisters and brother,But that day will come when i can hold you so for the first time.Your balloons will be getting sent about 9am today i choose pink ones as thats the colour you would have liked as all girls do,I hope Angel Baby doesn't mind as i was unable to know if the first angel was a boy or girl,But if angel you was a boy i'm sure you would have given joanne anything any way,Like you gave her the best chance of life if only she had been able to grow what she neede to live on earth.Well i will say bye for now angels
mummy loves you both,Give gradpop my love xxx
Mar 9 2006 09:48 am
Hi babies thinking of you and missing you so much today,time now 5.30pm it was 21 years and 1 1/2 hours since i went in to the doctors room,and was told i was to go into hospital for more checks,I wasn't yet worried just thought it was normal alot of pregnant women get high blood pressure etc.So 21 years ago i was still looking forward to meeting you both.I didn't know what was to come in the following days,One angel already gone to heaven and got the angel wings,Now soon to know also you joanne was going to get yours. Never to hold you but when it is my turn babies to come to heaven i wont let go.I am just getting your balloons ready and also your teddies do hope you like them,I will be letting them go by yours and granpops tree at the cemetary 21 nice pink one's.
Thinking and loveing you forever in my heart,Granpop will take care and hold you untill the day i see you again.
Night Night darling angels xxx
Mar 8 2006 09:21 am
TY for sharing the story of the loss of your babies. Blessings to you and to yours, Muzz
Mar 8 2006 09:21 am
It's rare to find Potters parents here in the UK, and I congratulate you on your bravery in sharing Joanne's story. We've met before at other online forums and one of my journals is on Joanne's home page. They say time is a healer. I disagree. To take the place of the overwhelming grief in the passage of time is the notion of what your child could have and would have been like, had they survived and not been born with Potters. I'll be holding Joanne in my prayers on her forthcoming 21st birthday on the 16th March 2006, and send you all my love from here in Leeds. Love from Lynda Wilson (Elliott Beaumont's mum)xxxxxxxxxx E-mail: lindypop@ntlworld.com. Website: www.remembering-elliott.co.uk.
Mar 8 2006 09:20 am
Hello,
I've just read Joanne's story. It's heartbreaking. We lost our son James to Potter's Syndrome on 22nd September 2005. We did not know until the moment he was born that there were any problems. He was born five weeks early and lived for just over three and a half hours. He had been on a ventilator and we knew that we had to let him go. We held him as he died. It was literally seconds once the machine had been switched off. It's still very early days for us and some days are better than others - as I'm sure you know only too well!
Love and best wishes from Jackie, Alan and Abby Johnston, Scotland xxx
Feb 2 2006 09:03 am
hello anyone who is reading this. This is my mums website, im the eldest living daughter and im proud of the way my mum has dealt with her loss. My brother, sister and i have all grown up with the feeling that we do have another sister, Joanne. Even though she passed away before any of us were born, we know her as our big sister. We can all talk about her openly so my mum doesnt have to worry about her 1st baby being forgotten. Talking about Joanne to others isnt very upsetting, its like my mum says, she was born to be an angel. And i can tell you, theres a few times in my life ive felt theres someone looking after me!
Anyway, Mum - Love the site and love you! Kimberley Jayne x
Feb 1 2006 12:14 pm
Hello, i like all the things that are on your site. When i read it all it nearly made me cry. I think this site is the best life story site ive ever been on. Best wishes in the future love from chelsea leigh ballantyne xxx
